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F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) (@fussireland), Instagram profile photo
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F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)

Parenting
@fussireland
Children & young adults with disabilities in Ireland are facing long waitlists/no services/no support. Time to rally. #LetsMakeAFuss
  • Following 1.3K
  • Followers 9.8K
  • Engagement 1.3%
  • Avg comments 12

About F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) (@fussireland) is a Parenting creator on Instagram. The account has 9,800 followers and 609 published posts. Recent posts average 110 likes and 12 comments, an engagement rate of 1.3%.

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) belongs to the nano tier, the band usually drawn between 1,000 and 10,000 followers. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) follows 1,270 accounts, so the audience is roughly 7.7 times the size of the list followed. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) uses an Instagram professional account. Flinque files F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) under a single category, Parenting.

The Instagram bio for F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) runs to 19 words. The bio tags #LetsMakeAFuss. The latest activity Flinque has on record for F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) dates from November 2025.

Story Highlights

Unlocking shows the title and cover image of every story highlight this creator keeps pinned to the profile.

609 Posts

Of the 10 most recent posts shown for F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina), 6 are carousels, 2 are videos and 2 are single images. That mix leans toward carousels. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) has built a substantial archive of 609 posts. Against the audience, that is roughly 16 followers for each post published. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) also keeps 40 story highlights on the profile. 9 of those 10 carry captions, averaging 120 words each. The captions are written mainly in English. Words that recur across them include disability, services, people, should and family.

⚠️ Families of disabled children should not have to turn private suffering into public testimony before the system listens.

At the Disability Matters Committee, I raised concerns brought forward by Ireland about the impossible position many families are placed in.

⤷ Ethically, no parent should have to expose their child’s vulnerability, or the most painful parts of family life, to secure basic rights and services.

⤷ Politically, however, the reality is often different. Emotion is the most powerful levers in politics. Stories move systems in a way that statistics, reports and policy language often do not.

Families should not have to go public but often going public is what finally forces attention.

A functioning system would listen earlier - before families are pushed to breaking point, and before private distress has to become a public campaign.
It's hard to get across complex topics online, but we would be doing a disservice if we didn't try to keep having these conversations. We would love to hear your thoughts ❤️

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⚠️ Dispersing adults with an intellectual disability far outside their own communities into services shaped by commercial interests has become the government’s current approach to residential provision.

This is wrong on every level.

⤷ It separates people from family, neighbours and familiar supports.

⤷ It treats residential care as a market, rather than a public responsibility.

⤷ It leaves people isolated in services that may be hundreds of kilometres from home.

⤷ It makes no economic sense: the state ends up paying enormous sums for fragmented, commercially driven placements instead of building sustainable supports in people’s own communities..

📌 We need properly planned, holistic supports for people with an intellectual disability - close to home, rooted in rights, dignity and belonging - so people can live full lives in their own communities.
⚠️ Children with co-existing intellectual disability and mental health needs are being failed twice.

Failed by the lack of proper specialist services and again by a system that often cannot even recognise the scale of their needs.

New figures I received through Parliamentary Questions, reported by in the, show a threadbare to non-existent service provision for this group of young people:

▸ CAMHS-ID waiting lists almost doubled in 2025

▸ Referrals have risen sharply in recent years

▸ Only 10 CAMHS-ID teams are operating nationally, when the HSE’s own model says there should be 16.

▸ In some parts of the country, the service is effectively non-existent. None of the existing services are staffed to anywhere near the level set out in the HSE's Model of Care.

▸ In other areas, the could not provide basic data because services are so underdeveloped or under-resourced

⤷ CAMHS-ID teams support young people whose distress may be hard to recognise and who face huge challenges in their lives.

⤷ These services are supposed to be multidisciplinary, with the right mix of psychiatry, psychology, nursing, social work, occupational therapy and speech and language therapy.

Instead, what we have is partial provision, patchy data, and children left waiting.

📎 Read more:
We know you feel it too, we know you've experienced it. Increasingly we see coverage of childrens disability issues shelved when we wont go along with a particular narrative, when we set boundaries. We need to have a serious conversation about ethical media in Ireland when it comes to the coverage of these issues

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⚠️ We should never accept long-term exile as a way of life for disabled people.

Yet this is the reality for many families because successive governments have failed to plan properly and failed to take the basic rights of disabled people seriously.

📰 The family stories in this excellent article by capture the heartbreaking and nonsensical nature of current service provision for people with an intellectual disability.

⤷ People moved far from home
⤷ Families fractured by distance
⤷ Services shaped by scarcity, not rights
⤷ Public money following fragmented provision instead of proper planning

📍 The figures I obtained through Parliamentary Questions on people living more than 100km from home are a major underestimate.

Large parts of the country are still unaccounted for.

💶 In government, the would phase out the state’s reliance on a model that allows companies to scatter services around the country according to their own commercial interests.

🏠 We would properly fund state and not-for-profit agencies to provide services in people’s own communities - services rooted in rights, dignity and belonging.

There is still a long way to go in upholding those rights across existing services too. But we will not get there by further fragmenting and commercialising disability supports.

📎 Read more:

Before We Die Disability Federation of Ireland Inclusion Ireland
⚠️ Parliamentary Questions of mine, which the initially declined to answer, show an alarming number of people with intellectual disabilities living very far from home because local services are unavailable.

And these figures are almost certainly a major under-representation.

↳ Large parts of the country could not provide usable data.

↳ The HSE South West figures do not include Cork people placed in Kerry, or Kerry people placed in Cork - even though some of those placements could be more than 100km from home.

↳ At least 606 people are recorded as living outside their home county.

↳ At least 193 are recorded as living more than 100km from their family home or community of origin.

▪︎ Distance from home deeply impacts on family relationships, community links, familiar supports and quality of life.

▪︎ A crisis placement should not become long-term exile from family and community because the government has failed to plan and provide local services.

📎 Read more:
Updated Info given Cabinet changes announced today

Email contacts on last slide

[ Image description: 8 pale yellow slides with blue font. Slide 1 has photographs of 4 ministers responsible for disability. Slide 2-6 outline their roles and subdivisions. Slide 7 is pale yellow with a photo of the Minister of Health and an outline of the role. The final slide is a reading list with a dark blue background and white font. Alt txt available]
If we've missed any, please comment below! This is available to download/print from NOW. Tag anyone who may find this useful

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s engagement

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s engagement rate on Instagram is 1.3%, between 1% and 3%, or 1 to 3 likes and comments per 100 followers. On a typical post that comes to about 1 like or comment for every 77 followers. Comments stay close to likes on F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s posts, at 110 likes and 12 comments on average, about 9.2 likes per comment.

Engagement rate

1.3%

Avg likes
110
Avg comments
12
Interactions : followers
1 : 77

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Frequently asked questions

These answers about F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) are generated from the Instagram profile data Flinque holds for the account.

Who is F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)?

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) (@fussireland) is a Parenting creator on Instagram. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) uses an Instagram professional account. The Instagram bio for F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) runs to 19 words.

How many followers does F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) have?

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) has 9,800 followers on Instagram (9.8K). F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) follows 1,270 accounts, so the audience is roughly 7.7 times the size of the list followed. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) has built a substantial archive of 609 posts.

What is F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s engagement rate?

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s engagement rate on Instagram is 1.3%, between 1% and 3%, or 1 to 3 likes and comments per 100 followers. On a typical post that comes to about 1 like or comment for every 77 followers. Comments stay close to likes on F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s posts, at 110 likes and 12 comments on average, about 9.2 likes per comment.

What does F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) post about on Instagram?

Flinque files F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) under a single category, Parenting. Of the 10 most recent posts shown for F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina), 6 are carousels, 2 are videos and 2 are single images. The 9 recent Instagram captions Flinque holds for F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) repeatedly use the words disability, services, people, should and family. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) writes those captions mainly in English. The bio tags #LetsMakeAFuss. F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) keeps 40 story highlights, which open with a free Flinque account.

How do I contact F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) for a collaboration?

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s contact details are not published on Flinque's public profile. The Instagram bio links to 2 external sites, and a free Flinque account opens those links. Brands with a free Flinque account can shortlist F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina) and use Flinque's outreach tools wherever a contact route is on file.

F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina)'s own Instagram profile is the one outbound link Flinque publishes for the account, and the 2 bio links open after signing up.

Public profile data sourced from Instagram. Flinque is not affiliated with F.U.S.S Ireland (managed by Rachel, Rebecca and Edwina).

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