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Foundation for Angelman Syndrome Therapeutics

Non-Profits & Religious Organizations
@cureangelman
FAST's mission is to cure Angelman syndrome. Follow us for the latest news about Angelman syndrome research, events and more! #cureangelman
  • Spirituality & Religion
  • Following 1.3K
  • Followers 5.5K
  • Engagement 1.38%
  • Avg comments 3

About Foundation for Angelman Syndrome Therapeutics

Foundation for Angelman Syndrome Therapeutics (@cureangelman) is a Non-Profits & Religious Organizations creator on Instagram, also filed under Spirituality & Religion. The account has 5,524 followers and 1,559 published posts. Recent posts average 80 likes and 3 comments, an engagement rate of 1.38%.

Foundation for Angelman Syndrome Therapeutics belongs to the nano tier, the band usually drawn between 1,000 and 10,000 followers. Foundation for Angelman Syndrome Therapeutics follows 1,284 accounts, so the audience is roughly 4.3 times the size of the list followed. Foundation for Angelman Syndrome Therapeutics is set up as an Instagram business account. Flinque files Foundation for Angelman Syndrome Therapeutics under Non-Profits & Religious Organizations, with Spirituality & Religion as a secondary category.

The Instagram bio for Foundation for Angelman Syndrome Therapeutics runs to 21 words. The bio tags #cureangelman. The latest activity Flinque has on record for Foundation for Angelman Syndrome Therapeutics dates from May 2026.

Story Highlights

Unlocking shows the title and cover image of every story highlight this creator keeps pinned to the profile.

1,559 Posts

Of the 10 most recent posts shown for Foundation for Angelman Syndrome Therapeutics, 5 are carousels, 4 are single images and 1 is a video. No single format accounts for most of them. Foundation for Angelman Syndrome Therapeutics has built a substantial archive of 1,559 posts. Against the audience, that is roughly 3.5 followers for each post published. Foundation for Angelman Syndrome Therapeutics also keeps 1 story highlight on the profile. All 10 carry captions, averaging 88 words each. The captions are written mainly in English. Words that recur across them include community, fast, families, science and weekend.

Scholarship applications are now open for the 2026 FAST Global Science Summit & Gala weekend, November 5-7 in Orlando, Florida.

For many families, it’s the weekend where complicated science becomes clearer, questions get answered, and the Angelman syndrome community feels a little less far apart.

It’s the place where you will hear directly from researchers, clinicians, and industry leaders about the progress happening across Angelman syndrome research, clinical trials, and therapeutic development. You will also have the chance to connect with other parents and caregivers who understand what it means to navigate this diagnosis every day.

We know getting to Orlando is not easy. Travel, time away from work, childcare, and cost can make it difficult for families to attend. FAST is proud to offer this financial assistance program, because if you want to be there, we want to help!

These scholarships are generously made possible by FAST in partnership with, a family who knows firsthand what this journey feels like and wants others to feel seen, supported, and surrounded by hope.

Apply today ➡️ Application link in bio!
Oak Hill Bio has shared a community letter to the Angelman syndrome community with an important update on the next steps of the development of rugon¬ersen.

They are actively preparing to initiate the Phase 3 study in the middle of 2026. Eligibility criteria are available on clinicaltrials.gov; additional details, including study locations, will be updated as they become available.

Read the Letter ➡️ link in our bio.
Support, community and a chance to make a difference. 💙

The Race 4 Sawyer Grace Charity Golf Tournament returns this weekend to in Ennismore, with spots still available as fundraising efforts continue in support of Sawyer Grace and FAST Canada (Foundation for Angelman Syndrome Therapeutics

Full story at PTBOCanada. com
The second FAST LATAM Conference brought together more than 250 people in person in Mexico City, with nearly 500 more joining virtually from across the region 🇲🇽

Over two days, families, clinicians, researchers, and advocates came together to share research updates, clinical trial progress, and practical conversations around supporting loved ones living with Angelman syndrome.

A huge congratulations to the board and everyone who helped make this event possible. The continued growth of the Latin American Angelman syndrome community is helping strengthen connections, increase awareness, and move progress forward across the region.

Read the full recap at the link in bio.
⭐️ DAY SPONSOR: STELLA SCANNELL ⭐️
Stella is another one of my Angel buddies who lives and thrives with Angelman Syndrome. Stella — today’s ride is for you! 💙

It’s going to be a tough one with my last major climb of the trip ahead of me, but with your support and a little PMA (Positive Mental Attitude), we’ll get through it.

Have a great day everyone! Let’s ride! 🚴‍♂️
This Mother’s Day, we are recognizing the women who carry so much for the Angelman syndrome community, the mothers, grandmothers, caregivers, advocates, and loved ones who show up every day with extraordinary strength and determination. Many have become caregivers, researchers, fundraisers, and fierce advocates all at once, driven by love and hope for a better future.

You can make a meaningful impact by donating in honor of someone who inspires you. Your gift helps advance the research and progress that families are counting on.

🔗 in bio 🩵
Niki helps turn complex genetics into something families can actually use. As FAST’s genetic counselor, she translates the science and gives families the information they need to make informed decisions.

📅 Schedule today ➡️ link in bio!
Earlier this week, ASF and FAST hosted a webinar focused on educating the Angelman syndrome community on Medicaid to help unravel the changes happening in policy and politics and empower families on how they can advocate in their state.

Check out the webinar recording, resources, and sign up to be a state advocate today!

Learn more ➡️ link in bio!
The FAST Global Science Summit & Gala is heading back to Orlando in 2026 – this time at a new location, the Hyatt Regency Orlando. Start thinking about your travel plans now so you can join us for a powerful weekend of science, connection, and community!

🌎 International Guests - If you live outside of the United States and will need a visa to travel to the US, please consider applying now. If you need a letter of invitation to accompany your application, email for assistance.

⭐November 5–7, 2026
📍Orlando, Florida (new venue!)

📅Agenda:
• Thurs, Nov 5: Community Event (6pm-8pm)
• Fri, Nov 6: Global Science Summit (all day)
• Sat, Nov 7: Global Science Summit (AM) and FAST Gala (PM)

For families needing financial assistance to attend, our parent/caregiver scholarship applications will open on June 1.

Head to the link in our bio for more information about our signature event!
If your loved one was diagnosed with Angelman syndrome, you may be feeling overwhelmed, uncertain, and full of questions. You are not alone.

FAST is here to help parents, caregivers, grandparents, and family members find trusted information, connection, and a path forward. Whether you are looking for reliable resources, answers to common questions, or a community that understands, we invite you to connect with us.

➡️ Connect with us by heading to the link on our bio!

Thumbnails are unavailable for 10 of these 10 posts. Open a tile to view the post on Instagram.

Foundation for Angelman Syndrome Therapeutics's engagement

Foundation for Angelman Syndrome Therapeutics's engagement rate on Instagram is 1.38%, between 1% and 3%, or 1 to 3 likes and comments per 100 followers. On a typical post that comes to about 1 like or comment for every 72 followers. An average post collects 80 likes and 3 comments, close to 27 likes for each comment.

Engagement rate

1.38%

Avg likes
80
Avg comments
3
Interactions : followers
1 : 72

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Research Foundation for Angelman Syndrome Therapeutics further

Flinque ranks Instagram creators in Spirituality & Religion, categories Foundation for Angelman Syndrome Therapeutics is filed under, and its free tools measure the same figures for any public account.

Frequently asked questions

These answers about Foundation for Angelman Syndrome Therapeutics are generated from the Instagram profile data Flinque holds for the account.

Who is Foundation for Angelman Syndrome Therapeutics?

Foundation for Angelman Syndrome Therapeutics (@cureangelman) is a Non-Profits & Religious Organizations creator on Instagram, also filed under Spirituality & Religion. Foundation for Angelman Syndrome Therapeutics is set up as an Instagram business account. The Instagram bio for Foundation for Angelman Syndrome Therapeutics runs to 21 words.

How many followers does Foundation for Angelman Syndrome Therapeutics have?

Foundation for Angelman Syndrome Therapeutics has 5,524 followers on Instagram (5.5K). Foundation for Angelman Syndrome Therapeutics follows 1,284 accounts, so the audience is roughly 4.3 times the size of the list followed. Foundation for Angelman Syndrome Therapeutics has built a substantial archive of 1,559 posts.

What is Foundation for Angelman Syndrome Therapeutics's engagement rate?

Foundation for Angelman Syndrome Therapeutics's engagement rate on Instagram is 1.38%, between 1% and 3%, or 1 to 3 likes and comments per 100 followers. On a typical post that comes to about 1 like or comment for every 72 followers. An average post collects 80 likes and 3 comments, close to 27 likes for each comment.

What does Foundation for Angelman Syndrome Therapeutics post about on Instagram?

Flinque files Foundation for Angelman Syndrome Therapeutics under Non-Profits & Religious Organizations, with Spirituality & Religion as a secondary category. Of the 10 most recent posts shown for Foundation for Angelman Syndrome Therapeutics, 5 are carousels, 4 are single images and 1 is a video. The 10 recent Instagram captions Flinque holds for Foundation for Angelman Syndrome Therapeutics repeatedly use the words community, fast, families, science and weekend. Foundation for Angelman Syndrome Therapeutics writes those captions mainly in English. The bio tags #cureangelman. Foundation for Angelman Syndrome Therapeutics keeps 1 story highlight, which open with a free Flinque account.

How do I contact Foundation for Angelman Syndrome Therapeutics for a collaboration?

Foundation for Angelman Syndrome Therapeutics's contact details are not published on Flinque's public profile. The Instagram bio links to 1 external site, and a free Flinque account opens that link. The account is registered as an Instagram business account. Brands with a free Flinque account can shortlist Foundation for Angelman Syndrome Therapeutics and use Flinque's outreach tools wherever a contact route is on file.

Foundation for Angelman Syndrome Therapeutics's own Instagram profile is the one outbound link Flinque publishes for the account, and the bio link opens after signing up.

Public profile data sourced from Instagram. Flinque is not affiliated with Foundation for Angelman Syndrome Therapeutics.

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